Little Warriors, Big Challenges: Meeting the Special Needs of Children with Rare Diseases
Parenting and Relationships
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1h 0m
Despite the complex medical conditions children might face, it’s imperative to understand the challenges ahead. While you may be figuring out how you can do your part, Amie E. Jones, M.D., can show you the way forward.
Join us for a motivational session with Amie E. Jones, M.D., interim Chair of the Mayo Clinic Department of Pediatric and Adolescent Medicine and Director of the Mayo Clinic Children’s Center. This event aims to raise awareness and empower YPOers to support children with rare diseases and medical complexities. By exploring innovative healthcare solutions and highlighting the unique challenges faced by these children and their families, YPOers will learn how to get involved with advocacy efforts, foster understanding, and drive positive change in pediatric care. A 20-minute Q&A will conclude this virtual event.
Key takeaways include:
Recognizing and prioritizing the needs of the caregiver.
Building confidence in navigating the health care system.
Identifying the unique challenges for children, families, and healthcare teams.
Understanding the prevalence of rare diseases and medical complexity in children.
Discovering pioneering innovations and evolving technologies in pediatric healthcare.
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